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Guide summary

  • Life insurance can provide financial support for your child if you pass away while the policy is in place. The pay out could help cover the cost of long-term care, specialist therapies or anything else your child needs
  • Writing the policy in trust means you can choose trustees to manage the pay out on your child’s behalf. This could also help protect your child’s entitlement to means-tested benefits, such as Universal Credit
  • Most insurers offer a trust writing service, usually at no extra cost
  • Trusts are legal arrangements, so you may wish to get legal advice before setting one up

Life insurance for parents with a disabled child UK

As a parent, you want to know your child will be financially secure after you’re gone. This may be an even greater concern if your child is disabled and will need ongoing care and support. Life insurance can provide a financial lifeline, helping to cover care, housing and specialist support throughout their life.

This guide explains what you need to know about taking out life insurance as the parent of a child with special needs, including how much cover you may need and how to choose the right policy for your family.

Do parents of a disabled child need life insurance?

Many parents need life insurance to help protect the financial future of their children and loved ones. 

It can be especially important to arrange life insurance if you have a disabled child because:

  • Your family could lose income and practical support if you pass away
  • Additional disability-related costs can make the cost of living higher
  • The surviving parent may need to reduce their working hours or stop work to provide care for your child
  • A pay-out could help replace lost income, cover essential expenses and maintain your family’s standard of living.

You may also use life insurance when planning for your child’s future. For example, a lump sum pay out could help fund ongoing care, housing and specialist support throughout their life.

Can parents of a disabled child get life insurance?

Yes, if you’re a parent of a disabled child, you could get life insurance depending on your own personal circumstances.

The application will include questions about your:

  • Age
  • Health
  • Smoking status
  • Weight (BMI)
  • Occupation.

These factors will help determine your eligibility and the cost of your policy. It’s unlikely that the insurer will ask about your child’s disability.

Although it’s important to answer every question fully and accurately when applying for life insurance, as incorrect or incomplete information could invalidate your policy and affect a claim later.

Many families combine more than one type of policy. For example, a decreasing policy to help cover a repayment mortgage, plus level term or whole of life cover for the long-term costs of supporting a child.

What types of life insurance could parents consider?

There are various types of life insurance to choose from. The right option for your family will depend on your specific situation.

The table below outlines the main policy types that you might consider:

TypeHow it worksThings to consider
Level termPays a fixed amount if you pass away within a specified term (up to 50 years depending on your age)The fixed lump sum could help to cover long term care and living costs. It’s usually one of the cheapest types of life insurance
Decreasing termThe payout reduces over the term, typically in line with a repayment mortgageTaken out on its own may not cover lifelong support needs. It’s often the cheapest type of life insurance
Joint term life insuranceCan cover both parents for a set term, paying out if either parent passes awayCan be cheaper than taking out two single policies, but only provides one pay out, usually on the first death during the term
Whole of lifeCovers you for life, provided premiums are paid, and so will pay out whenever you pass awayCan offer lifelong financial security. Typically more expensive than term cover.

Please note, The Insurance Expert does not provide quotes for whole of life insurance.

Many families combine more than one type of policy. For example, a decreasing policy to help cover a repayment mortgage, plus level term or whole of life cover for the long-term costs of supporting a child.

If you have a mortgage, our guide to mortgage life insurance for parents provides more information on this topic.

How much life insurance do parents need?

The amount of life insurance you need to help protect your family will be unique to you and your child’s support needs.

To get a good estimate, you may consider the following costs:

  • Outstanding mortgage or other debts your family may be liable to pay if you were no longer around
  • Household bills, childcare and day-to-day living expenses such as clothing and food
  • Current and future support costs, such as specialist therapies, equipment, transport, housing, education and care
  • Your funeral costs (the average cost of a UK funeral is £3,828[1])
  • Future one-off costs such as home adaptations or replacement equipment.

When deciding how much life insurance you need, consider how long your child may need financial support. 

Many policies are set to end when a mortgage is repaid, or a child becomes financially independent. 

However, a disabled child may need support for much longer, which could increase the amount of cover you need.

The amount you need may also depend on any other financial support your child could receive if you pass away, such as:

  • Your savings, existing life insurance policies, pension benefits or a death-in-service benefit from your employer
  • Government benefits, disability allowances, grants or trusts available to your child.

Here’s an example of how to calculate cover:

Care and support costs: £10,000 a year

+ Outstanding mortgage: £100,000

+ Expected funeral costs: £4,000

- Savings: £30,000

Policy term length: 30 years

Total cover amount = £374,000

Should life insurance be written in trust for a disabled child?

Yes, depending on your circumstances it could be important to write life insurance in trust.

A trust is a legal arrangement that involves choosing people you trust (trustees) to manage the policy on your child’s behalf, as well as documenting how you’d like the pay out to be used for your loved one (letter of wishes).

Trustees will distribute the pay out in line with your child’s needs when the time comes.

There are several benefits of writing life insurance in trust:

  • To help protect your child’s eligibility for means-tested benefits. Writing your policy in trust keeps a future pay out separate from your child’s own capital, potentially avoiding the loss of government benefits or care
  • You keep control over how and when the money is used. Trustees manage and distribute the pay out on your child’s behalf. This can be particularly helpful if your child could not manage a large lump sum themselves
  • The pay out may reach your family sooner. A policy not written in trust pays into your estate, which may need to go through probate. This can delay the funds becoming available for your child. A trust can help avoid this potential delay
  • Potentially avoid or minimise inheritance tax (IHT). Writing your policy in trust may help keep the pay out outside your estate for inheritance tax purposes. This could reduce the amount of inheritance tax payable (which is currently 40% above the threshold) if your estate is liable.

Some UK trusts for disabled people receive special tax treatment. You can find out more on GOV.UK or seek legal advice for further guidance.

Does a life insurance pay out affect your child’s benefits?

Yes, a life insurance pay out could affect your child’s entitlement to means-tested benefits, such as Universal Credit, if they receive the money directly.

Without a trust in place, the money goes directly to your child, which means it may be treated as their capital for means-testing purposes. This could reduce or stop their government financial support.

With the policy written in trust, the trustees have legal ownership. This could help ensure that your child benefits from the pay out without losing access to means-tested benefits and funded care.

Life insurance for parents of special needs children top tips

  • Consider your child’s current and future support costs when deciding how much cover you need
  • Choose a term length that lasts for as long as your child needs, this may be beyond their 18th birthday
  • Complete your life insurance application with accurate information to avoid any problems with claims in the future
  • Write your policy in trust to help reduce the impact of a pay out on your child’s benefits and care support
  • Regularly review your cover to ensure that it continues to meet your family’s needs
  • Make sure your will is up to date and includes details of your policy and trust

Extra support

When planning for your disabled child’s future, it could be beneficial to get professional advice.

A professional can help you with a range of tasks, including:

  • Writing your will
  • Setting up an appropriate trust
  • Choosing trustees and beneficiaries
  • Inheritance tax planning.

The Law Society directory allows you to quickly search for legal professionals in trusts, wills, disability and benefits.

UK charities and not-for-profit organisations that could also provide advice and guidance:

Compare life insurance for parents with disabled children

A life insurance policy can help give you peace of mind knowing that the care your child receives today could be paid for in the future.

At The Insurance Expert, we specialise in helping UK parents find affordable cover that meets individual needs and circumstances. 

We work with leading insurers, including Aviva, LV= and Legal & General, allowing us to quickly compare prices and provide suitable policy options.

Our service offers fee-free expert support and there’s no obligation to buy a policy through us.

Get in touch today for a free, personalised quote.

Please note, the service you receive through The Insurance Expert is provided by Reassured, an FCA regulated life insurance broker.

FAQs

Can life insurance be left to a disabled child?

Yes, you can leave a life insurance payout to a disabled child. However, depending on your circumstances, it may be sensible to write the policy in trust.

Without a trust, a large lump sum paid directly to your child could affect their entitlement to means-tested benefits and funded care. It could also be difficult for them to manage if they’re not able to handle the money themselves.

A trust gives you better control over how the pay out is used and who manages it (your chosen trustees). It may also keep the money separate from your child’s own funds, which could help reduce the impact on their benefits.

What is the best life insurance for parents of a disabled child?

The best life insurance for parents of a disabled child depends on their circumstances, budget and their child’s needs.

Level term is one of the most popular types of life insurance for families, and it can be one of the cheapest. However, it could also be worth considering whole of life insurance. Both options provide a fixed payout that could help cover your child’s long-term care, housing and everyday living costs.

You could also take out more than one policy type to help cover different expenses. Comparing policies, features and prices can help you decide which solution is right for your family.

Is life insurance more expensive if I have a disabled child?

Having a disabled child doesn’t typically affect the cost of life insurance. 

Insurers usually just need information about you, including your age, health and lifestyle, to help determine your eligibility and the cost of your premiums.

If you smoke, have a pre-existing health condition, a high BMI or a dangerous occupation then you may pay more than the standard rate for life insurance.

Who should I choose as trustees?

Many people choose a relative or friend, alongside a professional (such as a solicitor) to oversee a trust.

When deciding your trustees, you’ll need to think about:

  • Their trustworthiness and financial competence
  • Their understanding of your child's needs
  • Their willingness to take the role on
  • Their health and availability over the long term (will they outlive the policy term?)
  • Trustees must be aged over 18 with a UK bank account.
Should both parents have life insurance?

Yes, if both parents provide care or an income, you may consider taking out cover for each parent to help protect the family. 

Some parents take out joint life insurance, which covers two lives simultaneously, but this policy only provides one pay out if either parent passes away. 

If you’re a parent of a disabled child, taking out two single policies helps provide your child with financial security if both parents pass away while their cover is in place.

Can a child take out life insurance on a parent?

Yes, a child over the age of 18 could take out life insurance on a parent, so long as there’s valid insurable interest and the parent has given their consent.

Insurable interest

The child would need to prove to the insurer that they could face financial hardship if the parent passed away—for example, if they’re unable to work and depend on the parent’s income

Parent’s permission 

The parent must agree to taking out the policy, complete the health and lifestyle questionnaire and sign the application themselves.

It’s not possible to take out life insurance on someone else without them knowing.